A lot has been going on. It is funny how I thought my life was so busy with dd1 when she was a baby, but now having two is a whole other story.
First dd1 - developed her first ear infection last Monday. At first I thought she had just got something sticky in her hair, but when she got sent home from school the next day I realized that no, it wasn't anything she had put in her hair, but discharge coming out of her ear. Unfortunately this has led to a constant battle with her and me constantly bugging doctors on how to treat her. The nurse last Tuesday put her on ear drops. I called Wednesday morning after trying twice to get the drops in her ear with no luck to change to an oral med. They put her on Augmentum (horrible nasty stuff in liquid form as any vet would tell). Ya, that didn't go well so when I saw the doctor on Thursday for dd2's appointment I had her switch it to amoxicillin. I was hoping with it having a better taste dd1 would take it, but nope she spit it out just like the augmentum. So I then looked up online and found I can put it stuff so I put it in her juice or milk and this worked for a few days (sometimes too well - she wanted 2nds after finishing the drink), but then again she refused to take the meds.
Monday she returned to school, even though her ear was still draining, but she was physically fine. She did get a cold from Thursday-Saturday which she managed to give to FIL and then me so I have been battling it this week. On Tuesday the school called again about her ear discharge and said she had to be picked up. Don't know why they didn't have a problem with it on Monday. I figured I can't keep having this happen so I called the pedi office who said to call the ENT, so that afternoon FIL took her to the ENT. An hour later he calls me and says the ENT says she has to see the pedi and I need to give the pedi authorization for him to take her, which I did since I was too sick to get out of bed yesterday. They finally came home 90 minutes later, saying she got 2 shots in her legs to cover her dose for the next 24 hours and to try putting the amoxicillin in chocolate frosting tomorrow night.
I was praying this was the end of this, but then this morning a cop shows up at the door. FIL had taken dd1 out to the library and park and I thought something had happened to her when she starts questioning me if I have a 3 year old girl. She then says DCFS called her and I ask if it has to do about her ear and she said yes. I then tried to explain to her about how it is being treated and she has seen so far 3 medical professionals about it in the past week. At that moment FIL and dd1 come home and dd1 is covered in chocolate all over her mouth and pants. I about died. The cop then asked to look at her ear, which hadn't been cleaned recently since I have been sick so it still had the died bloody discharge. I then try to explain how this is normal with ear tubes when there is an infection. So then asked for my number to give to cps so guess who is likely going to get a call from them to come check up on us again. I feel September is repeating itself.
Now on with dd2. My May has basically been now filled up with appointments for her. She was suppose to have a renal u/s tomorrow, but the hospital just called me this morning to say I need prior authorization first since it is out of network in Rhode Island. I am really starting to hate Network Health. We can't see the geneticist anymore since the insurance has refused to grant any more follow ups. Luckily dd1 geneticist is in MA so it was easy to fix that problem, though left the doctor feeling horrible about the situation. But because of this I am reluctant to go to RI anymore for any treatment . So now her u/s is moved to the 23rd since we need time to get the authorization.
Then on Monday she goes back to the Cardiologist. I am curious how her heart looks now. She is eating much better - up to 4oz every 3-4 hours and is no longer doing that horrible heart failure cough.
Developmentally though I am concerned about her. She is still very much like a newborn - not meeting any milestones yet and just eats and sleeps all the time. EI is coming next Thursday to finish the 2nd half of her intake and then they will do a service plan and schedule.
The following Monday we have to take her up to Waltham for her cranial facial eval. I am surprised we got an appointment so quick - they actually had an opening for this Monday, but we can't because of the cardiologist appointment. I hate how we have to travel so far, but can't risk calling Hasbro and dealing with these insurance issues anymore, so Boston it is. Good news is is it is the chief of surgery who we will be seeing so the doctor seems to one of the big shots so hopefully we can get some definite answers of what is wrong with her and what to do about it. It is probably a good thing because you know what your stuff you would think there is nothing wrong with her face, but us family members know that there is something there that isn't right. I know it is nothing urgent, but would like it corrected by the time she starts school fulltime.
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