Sunday, April 21, 2013

We have a date

DD2 is having her surgery this Thursday for her PDA.  We have to be up in Boston for 7:30am the day before for an intensive 6-8 hours of testing.  That means getting on the road at 5, and since they are going to sedate her that morning for the echo I have to be up and feed her at 3 - since she can't eat after 3:30am.  Can you say I will be tired that day!  Since I refuse to go home that afternoon during rushhour only to return the next morning we have decided to stay in town that night.  Not sure yet if it will be at dh's uncle's place or a hotel.  Then Thursday-Saturday I will stay with her in the ICU.

I am looking forward to her finally getting fixed.  Everyday she just gets worse.  A couple of weeks ago she started coughing badly despite being on the lasix and now in the past 2 days she has been feeding really poorly - only drinking like 2oz at a time instead of her normal 3.  Yesterday was her 2 month birthday so it really concerns me how small she is.  She likely went from being 30% on the chart at birth to now not even being on the chart. 

It is hard to realize that all I wanted was for her to be born so she would be safe and it was this act of being born that caused her to go into heart failure :(

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